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philosopher

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Doesn't this indicate the need to pursue gene therpay to enhance the abilty of those effected?

My son is very intelligent and capable about what matters to him. He can do academics, he speaks, but struggles with abstract concepts and expressive language. Many autistic people have this problem. High functioning people have this problem but, manage better than mid functioning people.
Researchers should be pursuing away to bridge the gap.
I read about other parents who deal with this daily. Spectrum ignores our questions and ask for donations. My response is why would I donate to people who ignore me?
See link.
https://twitter.com/Spectrum/status/1005842024430473216?s=17

161 day(s) ago

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Answers (1)

Kravenhead
I think that's the goal, but they're still hunting down all the genes involved. There seems to be several.
It's really a shame that Spectrum doesn't respond to inquiries. At the very least they should refer people to those that can answer questions.
They probably need to hire more staff to handle inquiries. Autism is supposed to be their specialty. They're not acting like it.

Posted 161 day(s) ago

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Kravenhead
160 day(s) ago
You have a lot to deal with right now. Maybe when things get resolved you can contact them.

philosopher
160 day(s) ago
I no longer have patients for pompeous, immoral people. I am too angry right now. What the quake surgeon does not know is I am that most persistent women on Earth. I always find a means to get even one way or other.
The incompetence people who ran my son’s first school were shocked and devasted that a better ABA school took him. The bitch Jill said they never would. Shortly after her husband dumped her.

Kravenhead
161 day(s) ago
I see at the bottom of Spectrum's page it's still copyright protected by the Simons foundation. That's probably how they're listed in the phone book.

philosopher
161 day(s) ago
I never found a phone number for Spectrum. Simon Foundation was on 5th Avenue.

Kravenhead
161 day(s) ago
Since they're located nearby, have you tried calling them?
It's harder to ignore someone on the phone than it is via e-mail.

philosopher
161 day(s) ago
They used be Simon Foundation. They started some place in Manhattan. I could get there in and hour and speak face to face. Too many scientist as we known have poor communications skills. They are their own worst enemies because if, I won lotto I wouldn't be inclined to donate to such callous people.
Before my husband retired I donated to CAN (Cure Autism Now) and later on autismspeak.org. I still would if, I saw great potential, devotion and felt any empathy.
I attended CAN seminars. Researchers their actually spoke to parents and tried to answer questions. We paid a lot to attend these seminars in Manhattan. I am sure Portia Iverson and husband John paid them very well. They were wealthy people who started Can for their autistic son.
These days I run into few people are as devoted as Portia and John.

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Question Title Doesn't this indicate the need to pursue gene therpay to enhance the abilty of those effected?
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